So much of my anxiety is anticipatory. Like 90% of it. I know this, yet it is really hard to control. It is almost impossible to tell myself to just simply not think about something. It would be like me saying to you, “close your eyes and DON’T think about the color blue.” ALL you are going to do is think about and imagine the color blue. Since so much of my anxiety is related to travel and most travel or trips or drives are planned and not spontaneous, I suffer from anticipatory anxiety almost constantly. If I am invited to a dinner or event, I anticipate it for the days leading up to it. I overplan, checking Waze and other maps to see how long it will take to get there. I overthink all the different things that could go wrong or the elements I can’t control.
Even with horrible anxiety and panic disordered, I have always been pretty independent. I preferred (and still do prefer) to drive somewhere alone. I never want to be a burden to someone or ruin their time by having anxiety. My sister went away for a weekend over this past summer, during the same time I had a negative reaction to a new antidepressant, and I had the closest thing to a nervous breakdown I have ever experienced. It is still hard to think- or write- about. My sister has been planning a girls’ weekend trip to Florida for the first weekend in December (like fly out Friday and home Monday) and I have been soooooo anxious about it. It has literally ruined the entire month of November for me. I just think over and over, like a broken record, that I don’t want her to go. Selfishly, it isn’t that I think something will happen to HER, rather it is that I think something will happen to ME.
I have never been or felt so dependent on other people. I never had this kind of a reaction to someone else going away. I was desperately hoping for something to happen to prevent her from going, but I also knew that wasn’t fair to her. She didn’t ask to be my person like this and she is a hard-working mom who deserves a fun weekend away. It has been difficult because she is the person I am closest to and who I would confide in the most about these things, but I don’t want her to feel guilty about leaving me or me being upset.
The most confusing thing about this is that I don’t logically know WHY I need her so much or why I am so afraid for her to be away. But, like most people with anxiety, I know that logic really goes out the window. My therapist has pointed out many times that I am actually the one who does things almost daily for my sister, whether it is babysitting my nieces, running errands, picking something up for her, helping her with something at her house, etc. I do a lot for my sister and yet I feel this immense panic at the thought of her being far away.
It is frustrating because I don’t need ANOTHER thing to be anxious about. I have enough things already and now it feels like I am adding something new to the list, while still not making a lot of progress on my existing triggers.
Like most teachers, I tend to kick off my summer with ambition plans. THIS summer was finally going to be the one where I focused on my health and practiced self-care. I was going to make myself a little daily plan that included hitting the gym and eating well. I was going to read a ton and walk a lot and go in my pool and see my friends for lunch and do some small house updates, etc.
Well, to say that things did not go as planned would literally be the understatement of the freaking century. I am not a person who does well without routine and since I didn’t have a job to wake up for (or kids to take care of or really any other responsibilities besides feeding my cats), I ended up lounging around a lot. And then that turned into staying home more. And then THAT turned into me getting more anxious when I DID have to go somewhere. Only a few weeks into my “relaxing, self-care, healthy me! summer” and I told my therapist that I thought I needed to go back on an antidepressant. This was not a shock to either of us because my issues with agoraphobia started to spiral out of control in the spring, after two years of covid giving me a completely valid excuse to not have to go anywhere. I guess I convinced myself that I was going to use my summer off to work on getting better and expand my comfort zone, but then the opposite happened.
I went to my doctor and she prescribed me Prozac. I have taken a few different medications over the past two decades, so I was open to trying something new. I have a lot of medication anxiety (which is the literal definition of irony when you need medication because of having anxiety). But I knew that I needed to go on something and I accepted that. The first couple of days were fine. I had a little dry mouth and lost my appetite completely. I can definitely afford to lose some weight, so this side effect wasn’t a deal breaker.
After only being on the medication for a week, my sister left on a four day vacation with her family that was about a five to six hour car ride away from the town we both live in. I was anxious about her leaving. She has always been my “person” (or if you are a Friends fan…my “lobster”), so I was uncomfortable about her being so far away, but I tried not to burden her with my fears because I was happy she was taking a well deserved vacation with my nieces and brother-in-law.
She left and I COMPLETELY LOST MY SHIT. I honestly don’t even know what happened. I have had panic attacks obviously, but they usually hit and then subside. I have had lingering anxiety, but even that eventually has a period of relief. I had what felt like panic attacks 24 hours a day the whole time she was gone. I have never experienced anything like it. I completely shut down and wouldn’t talk to anyone. I could not get off my couch. There were times I wanted the blanket off my legs and I couldn’t do it- I couldn’t muster the energy to peel the blanket off of myself. I didn’t eat, hardly drank water, and just felt like I was having heart palpitations. I obsessively thought about needing to go to a mental institution or the hospital. I desperately wanted her to come home. No one else could soothe me at all, not for lack of trying. I felt like I was crawling out of my own skin and I was terrified about what was happening to me.
I called my doctor, who told me to stop the Prozac. I somehow survived the weekend and my sister came home. I thought that as soon as she was home, I would immediately feel better. I didn’t. It’s been another week now and I am just starting to feel a little better. I still am having SO much anxiety and am taking Xanax several times a day. I have had a bunch of extra appointments with my psychologist. I even went back to the doctor and unfortunately, my primary care physician was on vacation and I saw another doctor, who told me to (and I literally quote) “bake a cake for your sister and read The Secret” and then she patted my arm and said, “you feel better, right? Ok good”.
I desperately tried to find a new psychiatrist and it was SO hard. It really made me realize how messed up our mental health care system is. And I am privileged enough to have health insurance and the internet and the ability to make phone calls. My appointment isn’t until Tuesday and I am just trying to make it through each day until then.
I don’t know if it was a negative reaction to the medication or just complete fear of being without my sister, but I was genuinely so scared and it was one of the worst experiences of my life. I still do not feel right. I am still so anxious. It is not completely crippling like it was last week, but it is there- steady and festering. I am scared about what to do next. My mother came to my house to sit next to me and make me shower and I remember saying to her that I promise I would never hurt myself, but that I can now understand why people do. I wanted the panic and fear and pain to end. I still do. I literally felt that I was going to die.
I feel like this all just sounds so stupid and is just not capturing how bad I felt. But I guess those who know, know. I still don’t feel like myself. I worry about the damage I did to my relationship with my completely normal and not mentally ill AT ALL boyfriend, who was so sweet and caring and probably shit scared. I know the feeling of helplessness that comes when you are the one having to deal with this. I am sure he sees me differently now. I worry about the stress I caused my family, the burden I have placed on my sister, the guilt that I have or will negatively influence my sweet little nieces.
I hate this. If I won the billion dollar mega millions lottery yesterday, I would trade the winning ticket to make this go away forever. Every shooting star, ever birthday cake candle, every time the clock shows 11:11, I make the same wish: please make my anxiety go away. I’m so tired. I’m so tired of it. I realized this week that I have suffered from anxiety and panic and agoraphobia for almost HALF OF MY LIFE now.
So, my only plan now is to try to stay busy, make myself eat and drink enough to stay alive and make it to this appointment with the new psychiatrist. I’m trying not to be too hard on myself. I keep seeing my friends’ pictures on social media of them being at the beach or on vacation or at a concert and I have shut most of them out and when they ask me what I did over the summer, I am not sure if I should be like “had a total nervous breakdown”?? Maybe I should actually read The Secret and learn to bake so I can just say I did that (I kid). I have always been my own worst enemy so I am trying to just go easy on myself, but it is really hard sometimes to just hate the mental illness and not actually hate me.
I got divorced in January of 2010, walked out of the courtroom, hugged my ex husband one last time, got in my car and drove away and never saw him again. Welll, that’s not 100% true, because there was one time about seven years ago that I saw him in the food store and hid in the bread aisle until I could run out, but that had more to do with the fact that I looked like a slob and was in my pajamas, rather than not wanting to see him because by that point I could have cared less.
When M. and I broke up, I was still very emotionally invested in his health and his life, but I knew any interactions with him encouraged him and that was not fair to either of us. I did not want to give him false hope that we would get back together. Neighbors would tell me they saw his truck on our street by my house, so I knew he was around, but it seemed harmless. Strangely enough, we didn’t run into each other anywhere, even though we lived only a couple miles apart. However, I was very aware of my surroundings, sort of knowing that us running into each other was inevitable and mostly dreading it.
It finally did happen last December. I was coming out of the gym and he was going in. As with most things, it was not as bad as I thought. We chatted for a little bit. In retrospect, I am grateful for this happening because he died less than two months later. It was the last time I ever saw him.
My gym was closed for a long time because of covid, and then because of flooding from a terrible storm. It just recently reopened and I finally started going back. It was weird because I felt like I kept looking at the door, thinking he was going to walk in. I feel like that happens a lot. I see someone who looks like him from behind walking or I see the same color truck as his and I have to remind myself that he is gone. I will never have to think about running into him again. How strange life is…one of the things I used to worry about is now something I wish could happen.
My boyfriend (also an M. name so I need to find an abbreviation for him….maybe Dr?) has an ex wife with whom he coparents, so she is very involved in his life. Luckily, she and I get along well, minimal problems and she is accepting of my relationship with the kids. But it is weird to me to be with someone who has baggage who is still present. Like they text about the kids and see each other multiple times a week. I can’t imagine what that is like because I have literally ZERO interaction with an ex at all.
It is like you are damned if you do and damned if you don’t. I never wanted to run into M. until he passed away and now I wish I could run into him, to see him one more time. As far as my ex husband, I hope he found a new food store really far away…preferably another state! 😉
I didn’t make it 😔 I got about 45 minutes into the drive and felt such overwhelming panic (and freaked out about the traffic), so I turned around and came home. I was about 25 minutes from the beach. I have never really done that before and I am beyond upset and disappointed with myself. I know I have to think about the fact I tried and got halfway, etc, etc…but I just feel like I failed.
Covid was one of the best things to happen to me as far as my agoraphobia goes. Nowhere to go, nothing to do…everyone HAD to stay home. For two years, I had the perfect excuse to not go anywhere. There were no vacations, no trips to the city, no concerts at the beach, no day trips, no overnight visits…nowhere to go, nothing to do. For two years, my comfort zone steadily shrank and my anxiety was practically nonexistent. That aspect of quarantine was wonderful. I was stuck at home, newly in love, and so content to just snuggle on the couch with him binging Netflix and Hulu. I still did weekly therapy, focusing on remote teaching, my new relationship, and the death of my exboyfriend. But, inevitably, life has started to go back to “normal” and I am left feeling very not normal. I knew Covid was a causing a huge step back when it came to my agoraphobia, but I don’t think I really grasped how much it negatively affected me. Before Covid, my “comfort zone” was an hour and a half or so. I still got anxious going somewhere new, but it was pretty manageable. I struggled with bigger trips and flying was still a huge obstacle, but I was doing ok. Over the past two years, my comfort zone significantly shrank to being about 25 minutes or so and I don’t like being in the car with other people. I especially am anxious about driving with my boyfriend and his two children. I have spent a lot of time in therapy talking about the need to expand my horizons and widen my comfort zone, but I haven’t actually acted on it. A couple of weeks ago, my friends went on an overnight girls trip to a place about two hours away. Even before Covid this trip was not one I usually went on, but this time I didn’t say no right away. I really did think a lot about going, but the length of the drive, coupled with a night at a bar and sleeping in a hotel was just overwhelming and I did not go. I obsessed over the decision, cried a lot, and was incredibly hard on myself for not being ready to do it. I realized that I had to stop just saying I was going to take drives and push myself and I needed to start just doing it. A couple of days ago, I drove (with my boyfriend) to my parent’s house, which is about 45 minutes away. Even though it is a route I had done hundreds of times in my life, I have only been to my hometown two times in the past two years and I had not driven that distance with my boyfriend before. It was the tiniest of accomplishments, but still was a step in the right direction and it was better than nothing. I decided that I am going to try to drive to the beach tomorrow morning by myself. It is about an hour and fifteen minutes away. I know the only way I am going to get better is to keep pushing myself to drive more often and go a little further each time. I am going to bed tonight telling myself that there is no pressure. If I start driving and can’t make it, I can go home and try another time. So…until tomorrow…
I’m so fucking angry all the time. This is not a comfortable emotion for me. I have always historically been a crier. No matter what the situation, my gut reaction was to get upset and cry. Not anymore. Sometimes I think I just have no more tears to cry. And when they dried up, I became filled with rage instead.
I feel so shut off from everyone right now. Part is that is self-preservation and protection. I am escaping into myself by withdrawing from people and situations and emotions. The other part is that I find myself just wanting to lash out. At times when I would normally be sympathetic or be able to show that I care, I feel myself harden, the anger percolating dangerously close to the surface.
This started- no surprise- right after M. died. The circumstances of his death are still unknown, at least to me. People tell me that “it doesn’t matter HOW he died, the end result is the same”. I am consumed by it. I still NEED to know. I drive to work drafting emails in my head to send to his mother, sometimes demanding the truth, other times begging for it. I read so much after he died about the stages of grief, desperate to understand. Denial…check. That lasted a couple of weeks. Then came anger aaaannnnd I’m still there. Stuck. I kind of feel like I moved through the other stages, but kept anger tucked in my back pocket. It is a weird comfort, years of pent up anger finally being unleashed, but it is directed all the wrong places. It is like a firecracker- scalding hot and bright red and then it explodes and just goes everywhere.
I have always avoided anger. The absolute worst feeling is knowing or thinking someone is mad at me. And I seldom get mad at anyone, even if I have just cause. It just has never been my go-to emotion. Now, I don’t know how to stop being mad. And I get angry at the dumbest things. I feel like I have been pushing people away, especially my boyfriend. And I don’t even know how to explain to them why because I don’t understand it. It seems too simple (or like a lame excuse) to say, “I’m angry because M. died”. But I’m SO ANGRY BECAUSE M. DIED.
The worst part is I feel mean. I know I’m hurting people who care about me and who genuinely want to make sure I’m okay. And I know I’m doing it in the moment and I don’t care. That is the complete opposite of who I normally am as a person. The person I am pushing away the most is my boyfriend, who is so lovely and wonderful and probably so very, very confused. I just don’t know how to articulate how I feel (which is also very unlike me). My anxiety is so bad right now I just want to be left alone and I know if I continue to act like this, I am literally going to be left and alone.
Living through a pandemic was obviously challenging in many different ways, but there were also some things that having to quarantine for a year and a half made easier…for one, my agoraphobia. It was definitely a nice break from having to constantly worry about going places because there was, quite literally, nowhere to go. Reflecting back on it now, I can definitely see how this caused some major setbacks for me. My “comfort area” has drastically narrowed and I have not had to push myself to leave it for a long time. Before COVID, I was okay with driving about two hours from home in most directions, but now I am probably hovering around an hour. I know that now that things are opening back up, I have to start pushing myself to go places, but it is just so hard. It. Is. So. Hard.
This past weekend, my boyfriend and I were discussing going to his mother’s beach house about an hour and a half away. Naturally all of the logistics pushed their way into my head- “it is the first weekend of the summer”, “everyone and their mother is going to be there”, “it will be SO crowded”, “the traffic is going to be a nightmare”. This is the doozy for me every time, the nail in the coffin…the traffic that I will have no control over. And then all the what-ifs start piling on….”what if I get sick?”, “what if I have to go to the bathroom?”, “what if there is an accident and the road is closed?”, “what if I have to go to the hospital?” (mind you, in my 42 years of life, I have gone to the hospital exactly one time for bronchitis).
Years ago, my therapist asked me what the worst part of thinking about flying was for me. Easy…”I can’t get off the plane if I want or need to”. She replied, “WHY would you NEED to get off the plane?” I still have never really had a good answer to that question.
The problem with anxiety and agoraphobia is that I can sit here and have a perfectly logical conversation about it. I am intelligent and well-educated. I have read articles, editorials, self-help books, etc. about these disorders. I can even be my own devil’s advocate (well, really, why WOULD you need to get off?). But, the problem is that once you start feeling those feelings, all logic goes out the window. I can’t control the wave of panic or the sensation that I can’t breathe or my body feeling on fire or any of the other multiple physical reactions that come along with these thoughts. I know it is all about lack of control. I know that. But when it is happening, it is really hard to remember that I don’t need to be in control.
I started dating my boyfriend a few months before quarantining began. It has been a blessing and a curse. It is a blessing because we had so much time alone together to be a couple, to learn about each other, to enjoy each other’s company. Also, we work together and he is my boss, so although it is something that was disclosed to HR, it caused a lot of gossip. It was nice to be able to take a step back from that. Now that things are “normal”, he and I are old news and no one really cares
It has been a curse because he wasn’t exposed to this side of me. Obviously, I told him I have these problems from the beginning. I would never hide that from anyone. But it has been very easy for him to say that it is no big deal, he can handle it, it wouldn’t change anything about how he feels, etc. I believe him that he believes himself when he says these things, but I also know that dealing with this can get old quickly. It is easy to say it is not a big deal until the time he wants me to go somewhere and I can’t do it.
And therein lies the other problem. My boyfriend is the most amazing, patient, understanding, caring man I have ever been with. I am so lucky to be with him. Even through the death of my ex-boyfriend and my grieving process, he has been unwavering in his support. Okay, that is not the problem. The problem is that I feel like I don’t deserve him. It isn’t like I have super low self-esteem, it is more like I feel like I am not worthy of him. He is so normal and I feel like I am so…flawed. He had a pretty normal upbringing and I had an extremely dysfunctional family and an abusive alcoholic father. In some ways, being with my ex was easier because he was more messed up than I was. That sounds mean in light of his recent passing, but it is true. I took care of him, I had my shit together, and even though I had these issues, his issues with addiction and depression dominated our relationship. Now, I feel insecure that when my new boyfriend sees the REAL me, he is going to end things or not love me anymore. I have never really felt like this before (not liking it). I have shared a little bit of this with him and he is so reassuring and sweet and always asks me, “why do you think that?”
Anxious ACOA 